Summer 2022 Reflection

After each summer of camp, we take some time to reflect on the successes and challenges of the season. This is both an internal and external dialogue, as we seek out feedback from families and staff on their experience with Beyond Akeela. We can’t thank you enough for continuing to share your thoughts with us. I firmly believe that discussions with families, teens, and staff throughout the fall season make our program better, and we’re grateful for the opportunity to continue building our program. With that, we want to share what we’ve been reflecting on this fall and looking forward to next summer.

Highlights
  • Engagement in Curriculum Sessions – This was our first year of going to an elective based system for curriculum sessions at camp, and we were so happy with the results. Campers showed more engagement in the conversations and discussions than we’ve seen in previous years. We’re excited to continue tweaking the sessions to align with the goals and objectives of our teen population.
  • A Dedicated Staff – This team of staff members was one of the best we’ve had the pleasure of working with. Their commitment and dedication to camp was remarkable. Working in any camp setting is a challenging endeavor, and this group never wavered on that commitment. It was also the first year we developed a true leadership team, allowing us as directors to take a step back and allow others to lead the program. That was a great development for Beyond Akeela that we’re excited to keep in the community going forward!
  • Boston Trip – Any time you bring a group of 50+ teens into a large metropolitan area for the first time, no matter how much you prepare there’s going to be a little fear of the unknown until you actually do it. We were SO impressed with how Beyond Akeela teens represented the community during both Boston trips. The groups made the most of their trips and capped off camp in amazing fashion!
What we’re working on
  • Year-Round Engagement – We’re excited to be bringing on a new Assistant Director (stay tuned for the intro when we make the hire!), who will enhance our “off-season” communication and engagement with families. We are excited to stay more connected to everyone throughout the year, and help teens maintain the connections and progress they make over the summer. Thanks for sharing your thoughts in the Year-Round Programming Survey!
  • Communicating Camper Progress – Beyond Akeela teens worked intentionally toward their goals last summer and showed great progress. We’re working on better systems to communicate that progress more effectively and timely to families, including overall observations at the end of the summer.
  • Acts of Daily Living at Camp – We’re developing plans for easier ways for teens and staff at camp to track the acts of daily living campers engage in at camp, related to hygiene, laundry, and keeping a tidy room.

We hope you all have had some chances to reflect on your time with Beyond Akeela this past year as a family, and that you’ll use the experiences as a launching pad for this coming year!

Warmly,
Kevin & Kristin


Evaluating College Options for Neurodiverse Teens

We were thrilled to welcome Colin Brady, Director of Student Success at Mitchell College, back to the Akeela community. Colin was the presenter in Beyond Akeela’s most recent webinar: “Evaluating College Options for Neurodiverse Teens.” A full recording of the webinar can be found above.

In this webinar, Colin discussed with families how he breaks down the many different college programs available to students with learning disabilities. With such an overwhelming number of programs and various types of support for social and academic success, Colin’s presentation provided great tips for identifying key characteristics in programs to look for and consider. Below are a few highlights from Colin’s presentation:

Presentation Highlights

  • Tiers of Support: There are so many schools and programs that offer support to neurodiverse students, but the level of support varies drastically. Colin breaks down types of schools into three tiers, based on the student population size and how ingrained the learning support program is into the culture of the school. One is not necessarily better than the others!
  • Measured Progress: An important thing to consider when selecting a program is how the program measures and tracks the success of students. It varies widely across the landscape of programs, each with its own philosophy and progress reporting procedures. It’s important to consider a teen’s goals for college and how that matches with the philosophy and measurable outcomes promoted by a learning support program.
  • Summer Programs: College is a big step for everyone, especially when it’s far away from home or someone’s first time away from home. Gaining some experience living away from home and experiencing college life through a summer program before going off to college can lead to better outcomes for success in college.

We hope you enjoy the presentation! Please feel free to reach out to us with any questions that you have!

Connect With Us!


Self-Awareness in Neurodiverse Young Adults

A couple recent events have sparked some thoughts I wanted to share with our community. Both surround the concept of self-awareness and owning one’s “-ness.” Some may recall the Owen Wilson movie “You, Me, and Dupree” in which Owen Wilson’s character preaches finding your “inner -ness.” While the movie makes light of the phrase, I think there’s something to it that is extremely important for college success. This is especially the case for neurodiverse young adults.

Understanding Your ‘Ness'”

I was talking with a guardian of a high school senior recently who is planning to attend college next year. The student was recently diagnosed with ASD Level 1, and the guardian was unsure of how to and whether to discuss that with the student. Especially for teens in high school, I always feel strongly that neurodiverse young adults should know as much as they can about their neurological makeup. This allows them to better understand how they learn and the kind of support they should consider accessing. The long-term self-awareness gained from that knowledge is empowering and essential for college success.

On a similar note, I just started reading Dr. Perry LaRoque’s Taking Flight: College for Students with Disabilities, Diverse Learners and Their Families. I highly recommend the book for any family considering postsecondary education for their neurodiverse young adult. The book leads with a conversation about owning one’s identity and self-reflecting on college readiness. Dr. LaRoque emphasizes the importance of understanding your strengths, passions, and areas you need support in as an essential component of college success. All of these are best understood when you have an understanding of and confidence in your identity. This is especially true because colleges are not specifically designed for diverse learners.

How to Build Self-Awareness

So, where to go from here? The more teens are afforded opportunities to make decisions for themselves, the better! Decision making empowers young adults and builds confidence in their ability to make good choices for themselves. This could be as simple as planning out their meals for a few nights a week, to more complex decision making through leading an IEP meeting. There are going to be mistakes made along the way and that’s okay! Mistakes are great opportunities for learning. The collection of successes and mistakes help neurodiverse young adults establish a stronger sense of self, which is essential for their college success.


Summer 2021 Reflection


All summers are memorable for their own reasons. They each bring a unique set of experiences and stories that are held sacred by the community members in those groups. For summer 2021, this especially holds true! Most everything about this past summer was new in some way shape or form, and it is absolutely one we are going to cherish memories from for a long time. We hope that the community of campers and staff are able to reflect back on the summer with fondness of the memories they created with one another. There is a lot we took away from the summer that we will keep near our hearts and minds as we move forward to 2022. Here are a few things that have climbed to the top of that list:

  • Resilience: Remember that time during the first session when a microburst happened right over Pearly Pond, closing entrances to camp and knocking out power across campus? We do too! What we remember most though is how resilient the entire community was through such a disruptive event. Teens, when you face challenges this coming school year, remember how you navigated that and other challenges at camp successfully.
  • Stepping Up: When given new responsibilities and freedoms, Beyond Akeela teens stepped up. Whether it was taking on a leadership role in a D&D campaign or community service group, or managing their laundry for the first time, Beyond Akeela teens took those on as growth opportunities. As a leadership team, we opened the door this summer for teens to take more responsibility and ownership over their experience, and they absolutely stepped up to the challenge!
  • Community: You’ve probably noticed we use this word a lot. There’s intentionality to it. We were amazed this year that after we doubled the size of camp, there was still the same sense of community teens and staff love. That is all a credit to the teens from last summer. Everyone came from different walks of life, yet remained excited about getting to know a new group of friends. Each camper helped create a warm and welcoming environment for their peers, which is what makes Beyond Akeela so great! We hope teens will reflect back on what helped make this summer’s community so special and find ways to recreate it at home and school.
  • Trying Something New: For virtually everyone at camp this summer, camper or staff, Beyond Akeela was a new experience for them. We also heard so many stories about teens trying new things at camp, whether it was new foods, performing in front of others, joining dance parties with people they met an hour before, and so many more. Taking these risks is what camp is all about, and where real personal development happens. What’s something new you’re going to try this year?

Everyone played a role in creating these points of reflection for us. While camp is only a three week experience together, there are so many moments that challenge everyone in the community to grow in ways that are unique to themselves. Like we have, we hope you’ll take some time to reflect on what camp meant to your family this year, and how the experience will create opportunities for growth in the current school year.

Warmly,
Kevin & Kristin


Elon Musk’s Aspergers Diagnosis Hasn’t Impeded His Success

Elon Musk

Beyond Akeela, as you know, is an intimate community summer program, designed by summer camp professionals who specialize in helping quirky kids to build social confidence as they transition to college and adulthood. But preparing campers for “the real world” isn’t just about helping them develop skills – we seek to inspire them to realize their limitless potential! We think today’s post about Elon Musk’s Asperger’s announcement is pretty darn inspiring.

When you hear the name “Elon Musk” you probably think of the high-end all electric Tesla automobile or Spacex rockets sending astronauts to the International Space station, or (more recently) his off-the-wall tweeting about cryptocurrencies like Dogecoin. There’s no doubt that this sometimes world’s richest man has his hands in a lot of pots – but did you know that he’s done and is doing it all despite having been diagnosed with Asperger’s Syndrome? Neither did we… until recently!

While hosting Saturday Night Live back in May of this year, the billionaire tech entrepreneur unexpectedly revealed the fun fact about himself:

“I don’t always have a lot of intonation or variation in how I speak… which I’m told makes for great comedy,” he joked in his opening monologue. “I’m actually making history tonight as the first person with Asperger’s to host SNL.”

Some are quibbling over whether or not he’s really the first, but learning that someone on the spectrum is at the top of their game, of course, shouldn’t come as any surprise. We learned just last year that Chris Rock had been diagnosed with NVLD, and there are many people who believe that other tech leaders and world-renowned geniuses are among the ranks as well:

Musk, of course, is one of the world’s two richest people, and it’s probably no coincidence that he has Asperger’s and is a highly successful tech entrepreneur. Temple Grandin, who is famous for her autism and autism advocacy, believes that Albert Einstein and Steve Jobs had Asperger’s, and that the same is true of many of today’s tech icons, though she won’t name names while they are alive.

We’d like to think that all of our campers already know that their Aspergers, autism or NVLD shouldn’t hold them back in life – and in many ways, might benefit them – but we’re always thrilled to hear stories like this that help us further illustrate that fact. This of course doesn’t mean that everyone attending Beyond Akeela will go on to become an eccentric billionaire tech entrepreneur – but it does mean that there’s no reason they can’t!

Beyond Akeela truly believes that the sky is the limit for all of our campers and we our program can help them all realize their dreams. Please share this story with anyone you feel might be inspired by it and let us know if you’re interested in learning more about our college readiness Aspergers program.

Photo Credit:JD Lasica from Pleasanton, CA, US, CC BY 2.0, via Wikimedia Commons


Screen Time for Neurodiverse Teens

We recently read this article with the intention of reflecting on our parenting style with our toddlers. (We have a lot to learn!). As many neurodiverse teens struggle with managing screen time, we wanted to share it with our community. The article focuses on the importance of developing “indistractable” teens, a critical 21st Century skill. While I’m not sure I agree with the choice of the term “indistractable,” some of the techniques and concepts the author explains resonate with how we like to do things at camp. We hope you find the article helpful in managing screen time for your family at home!

Stanford psychology expert: This is the No. 1 skill parents need to teach their kids—but most don’t
*Please forgive the clickbait-y title of the article!

Independent decision making

Independent decision making is a crucial life skill which applies to many facets of adulthood. Managing time, cooking meals, making and executing plans, for example, are all ways we implement independent decision making skills. This skill is developed over time and through practice. Allowing teens to be part of the decision making process for their screen time is a great way to practice this skill! Further, it is important to help them utilize systems and strategies to self-monitor their use. The author mentions the use of smart home technology, and there are other great timer tools to empower them with the responsibility of using.

Mistakes make perfect

We’ve all heard the phrase “practice makes perfect.” Practice is great, and we think mistakes that arise from practice are golden opportunities for growth! Once your teen has established a system for monitoring their screen time, let them trial it WITHOUT you. This is hard as a parent (we want our kids to be successful all the time!), but mistakes are an important part of the learning process. These lessons are better learned when teens create rules for themselves and take responsibility for them. This is a great way to let them learn from “natural consequences.” Natural consequences are directly related to an action taken by someone, as opposed to an arbitrary consequence that is unrelated to an action.

Self-determination

An underlying skill this article does not mention, but I believe is crucial to the author’s point, is self-determination. For teens to self-monitor their screen time, they must have some level of self-determination to do so. They must see the value in managing their screen time and be motivated to do so. Pending the age of your teen, we feel framing conversations around future goals is usually helpful in developing this self-determination. For college bound neurodiverse teens, this is a great opportunity to discuss how this practice translates to independently managing time in college. The conversations about self-determination and importance of monitoring screen time should be catered to the individual goals of your teen.


Do you have a neurodiverse teen preparing to transition into a post-secondary program or college? We’d love to chat and see how we can help!

Connect With Us!


Why Neurodiverse Teens Should Take Risks

We talk with our families a lot about the concept of risk taking at camp, and why it is so important for neurodiverse teens. We were pleased to come across this article from the American Camp Association that helps outline the benefits of taking healthy risks. The Myth of Risk: Promoting Healthy Behavior by Challenging Teens. The article does a great job of outlining the positive outcomes teens get from engaging in healthy risks. We encourage any family considering sending their neurodiverse teen to a summer program to read this article.

What is a Healthy Risk?

Both professionally and socially, our lives are often filled with healthy risks. Reaching out to an old friend, going to a social gathering (before COVID!) with new people, or starting a new job, are all examples of healthy risks we take as adults. While they may not feel risky for many, they can feel like risks for neurodiverse teens.

At Beyond Akeela, healthy risks can take many different forms. For some teens coming to camp is a risk in-and-of itself. For others, it may be initiating a game during free time, going white water rafting, or sharing their thoughts in a group conversation about applying to college. Acknowledging a mistake and apologizing to rekindle a friendship is another risk teens take in camp settings. Camp is full of these opportunities and is set up to prepare teens for success when they take risks.

Why is it Important to Take Healthy Risks?

As teens develop, so does their penchant to engage in risks. They are exploring their independence and how they fit into society, and often take risks to that end. Encouraging healthy risks at this crucial developmental stage is helpful in preventing negative risk-taking behavior. When we support positive risk-taking and set teens up for success, they realize they are capable of more than they thought before.

Per the research in the article above, teens who engaged in positive risk-taking clearly had positive social-emotional outcomes. They felt happier, more optimistic, successful, and more responsible. At camp, we’ve seen all of these outcomes anecdotally. Neurodiverse campers develop more confidence, they are more likely to take another positive risk, and often show signs of being happier.

One of the final things the article mentions is the increased sense-of-self teens feel when they engage in healthy risks. We couldn’t agree more with this. This is what camp is all about! For some teens, especially those who have not been part of a community like Beyond Akeela before, taking risks at camp helps them recognize how valued they are by other campers. It helps them develop a strong sense of self-respect.


Do you have a neurodiverse teen preparing to transition into a post-secondary program or college? We’d love to chat and see how we can help!

Connect With Us!


Navigating the College Search for Neurodiverse Teens

We were honored to share the expertise and experience of Colin Brady with the Beyond Akeela community through a free webinar. Colin is the Director of Student Success at Mitchell College, which includes his support of students in the Thames and Mystic programs. He is also a co-founder of the Middlebridge School and held the role of Director of Transition Services there. Colin has dedicated his career to supporting neurodiverse teens and young adults make successful transitions to college.

Keys to a successful post-secondary transition

In this presentation, Colin outlines some of the key factors to consider when planning your teens transition:

  • Self-awareness: One of the most important things families can do is engage their students in conversations about goals for after high school. It’s never too early to start! This leads to a stronger student understanding of their readiness and heightens their self-awareness. Self-awareness allows students to recognize when they need help, and feel confident advocating for their needs.
  • Social Outlets: Finding the right academic fit is important in the college search. Of equal importance is finding the right social fit for your student. When visiting and gathering information on schools, it is critical to consider the social environment your teen will enter. What kinds of clubs are there? How do students gather at the school? We wrote about the correlation between connectedness and college success in our previous blog if you’d like more information on the importance of finding the right social fit.
  • Transition Team: Developing a team around your student to help them navigate their transition to college is crucial. Team members can come from the student’s home, school, professional services, or anyone who knows your student well and is committed to their success. A good transition team brings different perspectives to your student’s readiness.

We hope you find this webinar informative, and encourage you to reach out should you have any questions.


Do you have a neurodiverse teen preparing to transition into a post-secondary program or college? We’d love to chat and see how we can help!

Connect With Us!


Connectedness and College Success

I am reading a new book called Unapologetically Ambitious, by Shellye Archambeau, which describes her life story and career arc as one of the few black female CEO’s in the tech industry. She offers great life and career advice from experience and I highly recommend the book! (Full disclosure: she also happens to be the mother of my best friend.) I expected, and received, lots of great advice about strategic planning and integrating life and work. I did not expect, but found, a strong connection between Shellye’s advice and the work we do at Beyond Akeela. For instance, Shellye focuses on the relationship between connectedness and college success, which we know is especially important for teens with Asperger’s and NVLD.

Keys to College Success

Each fall season we speak with many families about their teens and their post-secondary options. There are A LOT of options out there and it can feel overwhelming to parse through it all. As families start this process, we offer families a few pieces of guidance:

Connectedness

As Shellye writes (and what we feel is MOST important for teens with Asperger’s), social connection breeds better outcomes. A common denominator in success stories we hear is the social connectedness teens feel to their community. In these stories, the students related to the people around them through shared experiences. They connect through club offerings, specific degree programs, or finding a neurodiverse population at the school. Teens achieve more success when they are immersed in a community of peers who share similar life experiences with them.

Self-Advocacy

The biggest difference between high school and college is how students access support. In high school, students have structured support in place through an IEP or 504, or family members. The help is often put directly in front of them. In a traditional college environment help is available, but students must seek it out. We encourage families to consider their teens motivation and ability to independently access help so they can choose a post-secondary program that provides their teen with an appropriate level of support.

Don’t Rush the Transition

Transitioning to college is hard— for anyone. In the first week alone, each student must learn a new schedule, meet hundreds of people, and navigate an unfamiliar (and more challenging) academic environment. For the most part, students are asked to do this independently and there are not many check-in points as they go along. This is a BIG ASK. Therefore, we often encourage families to consider gap year programs, college transition programs, or communities that offer auxiliary support. These options all help ease their student’s transition and ultimately make the college experience more successful.

As your family begins to search for an appropriate post-high school program, we encourage you to look through this list of college and transition programs Beyond Akeela campers have found success in through the years.

Warmly,
Kevin


Do you have a teen with NVLD or Asperger’s who is looking to transition into a post-secondary program or college? We’d love to chat and see how we can help!

Connect With Us!


Chris Rock NVLD Diagnosis

With the plethora of news items about COVID-19, it is easy to miss good news these days. We recently came across some news about Chris Rock disclosing his NVLD diagnosis on The View. We are hopeful that this will continue to increase awareness for teens whose diagnosis is often missed and the limitless potential we always encourage our NVLD college transition campers to see in themselves.

What is NVLD (Non-verbal learning disorder)?

NVLD is a type of learning disorder that is not language based, but rather creates challenges in visual-spatial awareness, motor skills, and social skills. There are a lot of similarities in how NVLD and Asperger’s Syndrome present in individuals. For example, people with NVLD are often described as being very detail-oriented and thrive in the minutiae of problems. They have a harder time observing how each detail plays into the bigger picture. This often leads to challenges with executive functioning and master planning. The NVLD Project is a great resource for families and professionals looking for more information on NVLD.

How this helps NVLD teens ready to transition to college

A question many parents ask us is how to talk to their teen about living with Asperger’s or NVLD. One way is directing them to positive role models who share their diagnosis. Likewise, seeing this news can help college capable teens with NVLD and Asperger’s feel more confident that they are ready to transition to college. The more people like Chris Rock who share their NVLD or Asperger’s diagnosis, the more awareness and normalization it creates. Learning about a diagnosis can be hard for teens to navigate. The more individuals they can relate to, whether they be celebrities or peers in the community, the better. When teens can see successful individuals who share similar challenges with them it unlocks barriers to what they feel they can accomplish.


Do you have a teen with a recent NVLD or Asperger’s diagnosis who is looking to transition into a post-secondary program or college? We’d love to chat and see how we can help!

Connect With Us!